Pacemaker Number Four Is Imminent

Last Thursday I had my acupuncture appointment at 1 PM with my pacemaker check at 2 PM, so I was feeling pretty good, nice and relaxed, when the technician put the little wand over my shoulder and on top of my pacemaker. She turned the machine on and the last two checks I have had of my pacemaker from three months ago and six months ago showed the battery had about a 30% life expectancy yet. Both of those technicians told me I would probably have to get a new pacemaker sometime towards the end of 2015.

I was completely shocked when the needle came up to only 10% and was red indicating my battery has deteriorated dramatically in the last three months! It needs to be replaced in the next month.

In late 1996, I was diagnosed with a lower heart block and needed my first pacemaker. That pacemaker lasted about five years. In early 2002, number two had to be replaced and had lasted about six years. That is the one I have my attendant holding in the picture.

Then, in 2008, when this picture was taken, they inserted my third pacemaker. They told me it should last about ten years. Seven years is a long ways short of ten years, but what am I going to do?

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I have a Medtronic pacemaker with Guidant cables. The technician told me it would be an in and out same-day replacement unless the cables need to be replaced. If they do, then I will need to stay overnight one night. The cables concern me because they are the original cables from 1996. I am guessing they will have to be replaced.  I do not know how long those cables are good for.

For you longtime readers of this blog, you know I have often contended I do not know what the next thing will be coming down the line; I know it will be something and this is it! I hope the next thing waits a little while!

I know some of my posts are not fun and relaxing. I am just keeping it real. It is issues like this that keep me going. If you read my book, you know the doctors told my family in the fall of 1971 my life expectancy was nine years! At 43+ years I am still here and with another new pacemaker it should keep me going a while longer.

If you are not aware of my voice recognition software, Dragon Dictate, the microphone in front of me is how I operate all of my posts. That is why sometimes I can go on for long periods of time because all I have to do is talk and the words appear on the page. For those of you that know me well, you know I like to talk!

I will keep you informed about how this next pacemaker installation goes and probably have something to say about it in another post.

By the way, I have this pacemaker in the picture attached to my briefcase with a little rawhide strap and use it as a teaching tool when I give presentations. I wonder what the next pacemaker will look like?

As always, I look forward to your comments.

Later,

Mike

I Like Simon's Attitude

I received my inspiration for this post from a young friend who has a disability. He wrote me a note and shared a story about twenty-year-old Simon Wakelin, of Rhydargaeau, a small village near Carmarthen, West Wales. I am sure you all know where that is located!

At age eight, he was diagnosed with Duchenne Muscular Dystrophy, a muscle-wasting disease that has forced him to use a wheelchair ever since. He loved driving the tractors at his grandpa's farm before his diagnosis and liked taking care of his family's lawn. With the help of a friend, he has designed a lawn mowing wheelchair and has become the youngest lawn mowing businessman in his village.

I love hearing and learning about people's life stories. I tell mine for a living and have people telling and writing me about themselves all the time. It is wonderful! Young Simon's is yet another such story. For a young man with such an extremely involved disability to take on a physically-challenging career and make it work, is extraordinary.

Here is a photo from the article:

Click on the image to make it larger:

You may read the entire article by clicking here.

My favorite quote of Simon's is: Having a disability does not have to stop you from doing the things you want to. I love that coming from such a young man! Now, that motivates me!

Read it and see what you think of this young entrepreneur the next time you go out to mow your lawn. There are also several dozen Comments you may enjoy.

I look forward to your comments.

Later,

Mike 

Technology And Autusm

I know this is a few days late, but if you saw the 60 Minutes homage to Steve Jobs Sunday night, you saw this piece on how the iPad is changing the way, as they put it "autistic people" are communicating with the new toy. I have two things I want to point out about it before I show you Lesley Stahl's piece.

First of all, most people in the people with disabilities community prefer "person first" language. Another words, Instead of referring to "autistic people," why not refer to them as "people with autism"? It may seem like a small thing to many of you, but a movement has been growing for many years to try and change the culture and that begins with language.

The other thing I had a problem with was the way they chose to jump from a laminated piece of paper with letters and phrases right to the wonderful new iPad. There have been many devices that have helped to bridge that gap for many years. Ms. Stahl failed to mention them.

That being said, please look at this piece and see what you think:



She starts out using person-first language, but quickly changes to using "autistic people." I find that interesting. When you finish watching the segment, read some of the comments. I found many of them fascinating.

The other two segments on Steve Jobs were enlightening to those of us who did not know much about his personality and life story. I know I could not have worked for him, but I certainly like using his computers!

I look forward to your comments.

Later,

Mike

Cell Phones That Read

In keeping with the theme of change, and rapid change at that, check out this article about a cell phone that reads to people who are blind and visually-impaired by clicking here.

As assistive technology continues to make life easier for many people with a multitude of disabilities, we are just in the beginning stages of what is to come.

Personally, I really like my voice-recognition software which is enabling me to write the book and some of these blog entries. As someone with a severe disability, it's very exciting for me to see these new products.

Yes, change is inevitable, and we best embrace it. Learning is truly a life-long process, and as we see products like this new cell phone, and the Kindle, we need to recognize we have the process in place to address that change.