Showing posts with label disability issues. Show all posts
Showing posts with label disability issues. Show all posts

Friday, November 6, 2015

Another Gopher Basketball Season Is Underway!

Once again I am excited about the upcoming Gopher basketball season, as I have been going to watch since my first one in 1973 when I saw my first game with a good friend, Mike Johnson. After a brief stint of going to games in Berkeley when the conference was the Pac-8, I returned to Minneapolis and have had season tickets for almost forty years including season tickets when I was a student and tickets were six dollars!

The Barn will not be rocking tomorrow afternoon and not all the seats will be filled, but I still enjoy being in that old place and watching my favorite college basketball team! I have great seats sitting at almost midcourt in the front row right behind the broadcasters. Oftentimes people can see me while they interview the broadcasters at halftime.

Here is a great picture of the scoreboard several years ago my sister took from her seat about twenty rows up. Notice the balance scoring. You do not see that every day. In fact, I have never seen it again:
 As always, click on the image to make it larger:

The Barn was rocking that night as the Gophers were playing Michigan State. I do not know what year it was, but I do know it was during the Monson years.

Williams Arena has undergone a few changes since then. The most noticeable change is the lowering of the floor several inches. Other than that, I believe Williams is the second or third oldest college basketball arenas in the country! 

If you have ever been in The Barn during a close game or a major run by the home team you can attest to the excitement, energy and noise in that place. I love those nights in The Barn! It is those nights that get me through these frigid Minnesota winters!

During the 1996-'97 season which was officially wiped out because of all the NCAA rules violations of then coach Clem Haskins The Barn was especially loud as the Gophers had their finest season in history. They went to the Final 4 that year and lost the first game to Tubby Smith's Kentucky team which won the National Championship two days later.

Longtime Gopher fans will remember Coach Smith and his own downfall when he came and coached the Gophers.

Richard Pitino is entering his third year at the helm of the Gophers amidst his own allegations when he was an assistant for his father at Louisville. We will follow his situation and see what happens.

I wrote earlier how I had taken a break while I attended school at the University of California, Berkeley. When I arrived on campus in late 1973, I started researching the campus to find out where I could go to watch the Golden Bears basketball team play the likes of UCLA, USC and Stanford.

When I got to Harmon Gym, I was shocked it had thirteen steps into the front door. This was Berkeley, how could that be?

I went up to the Physically Disabled Student Program (PDSP) and asked my good friend, Ed Roberts why Harmon was not accessible? He told me it was on their list of trying to get all the old buildings on campus made accessible to students with disabilities. Ed told me if I wanted to get a ramp in the building with automatic door openers I should go to the Dean's office and ask how we can get it done. That was the beginning of my student activism on campus!

To make a long story short, that summer the University began construction of this ramp into the building. This picture is my father and me checking out the construction when my mom and dad made a road trip with me to get back for the upcoming school year. My uncle, Terry was stationed in McClellan Air Force Base near Sacramento and he rode with us for the trip until we dropped him off at the base.

I like the look on my dad's face as he carefully inspected the work going on:

 
Again, click on the image to make it larger:

The ramp was finished by basketball season and I was able to see some of my classmates play ball for the Golden Bears that year.

Basketball has always and always will be my favorite sport. I am not only a fan, but a coach and student of the game. I often do coaching from my seat and amaze people who come to the game with me not knowing much about the intricacies of a trapping midcourt defense or beating a 2-3 zone defense.

After playing and watching basketball pretty much my entire life I find myself teaching my friends things I learned from my dad and Flip Saunders in my time at Golden Valley Lutheran College.

Here is a photograph of Flip and me at one of our games. It is still hard to believe he is gone!
Click on the image to make it larger:

I also used some of those techniques when I coached my nephew for three years playing Park and Rec ball in St. Paul when he was just learning the game. One of my players told me he really appreciated the game much more because of everything I taught him about playing and watching basketball.

Back to Williams Arena and the upcoming season. Last year was a disappointing year after winning the NIT in Pitino's first year. After going 17-15 last year, I am looking forward to the new recruits and watching the development of last year's players.

Go Gophers!

I look forward to your comments.

Later,

Mike

Tuesday, June 9, 2015

Forty Years And Counting!

Forty years ago I was a student at the University of California in Berkeley. I received a letter from Nancy Crewe, PhD at the University of Minnesota asking me if I would be interested in being interviewed for a longitudinal study she was starting on life after spinal cord injury (SCI)?

She asked me to call her with my response and if I was interested, she would come along with one of her students and interview me in my dorm room. I called her and agreed to meet with the two of them in our study room down the hall from my room. As I remember, we talked for several hours and she had many questions regarding my life to that point, expectations, and an inordinate amount of form questions.

Shortly after our discussion, I moved back to Minneapolis to a job I had created selling modified vans for a company that had sold me my first van. I was also supposed to meet people who had recently suffered spinal cord injuries and needed equipment like wheelchairs, shower chairs and various other equipment prescribed by their doctors as they left rehabilitation.

I ran into Dr. Crewe one day in the old Rehab 7 Unit at the University. We chatted for a while when she told me she was happy to know I was now at the University and if I wanted to continue to be a part of her study?

Obviously, I did and did my first few interviews in their offices at the hospital. It was during that time I met Jim Krause who was one of Nancy's PhD candidates. Several years later Nancy moved to Michigan State University but continued to remain an integral part of the program. Jim remained at the U and once he received his PhD moved to Shepherd Center in Atlanta. After spending some time there he moved to the current location at the Medical University of South Carolina. That is where the program is run out of today and Jim is the director working with a fine staff of people who were instrumental in putting on our event this last weekend.

Saturday I took part in a small roundtable discussion group with eighteen people, many of them I have known from being long time Minnesota Gopher basketball fans. It was fun seeing people outside of Williams Arena.

At one point, Jim asked if there were any new topics we would like to address as the study moves on and in to different areas.

I mentioned studying Eastern medicine and how alternative, preventative medicine is working its way into the Western model as East meets West. In the twelve years I have been receiving acupuncture, healing touch, guided imagery, herbal therapy, hypnosis and others the traditional Western medical community has begun to integrate Eastern ideas. I believe it is a good thing as Western philosophy begins to practice a more holistic approach as they do in the East.

The second day was a celebration of forty years since the program has started. Jim told me of the one hundred initial participants, fifty-five are still involved! I believe those are extraordinary numbers when we were all told our life expectancies were extremely short. "9-3-71" is often the answer I give when someone asks me my date of onset. In my case, in the fall of 1971 the doctors asked my family to come down to the waiting room so they could speak with them. One doctor told my family my life expectancy was nine years! I guess I beat those numbers! Others had even more horror stories then I did. 

I'm attaching a photograph of the people at the event at the Nicolet Island Pavilion with the forty-year survivors and the fifty plus behind us: 

As always, click on the image to enlarge it: 

That is Jim and me in the middle of the group. I had to wear my Minnesota shirt since I graduated from there in 1980. It still seems hard to believe it has been thirty-five years since I graduated from college!

The next picture has all of the people who were at the event as more and more people are being added to their studies:

Again, click on the image to enlarge it:

Between an ongoing slide show behind the very accessible stage, slides were shown of statistics from the study, several slides of participants (one of mine included), speeches were given, awards were given, I had a great piece of Minnesota Walleye and much reminiscing, meeting new people, mentioning people who have left us, and I believe everyone would tell you they had an enjoyable afternoon and evening. 

As I understand it, this blog post will be in some way linked on the MUSC website so it will be available to everyone in attendance.

I would like to share one particularly interesting fact I got out of all of the storytelling that took place over the two days. The longest person I knew before this weekend who has survived severe spinal cord injury was fifty-two years. I found out Saturday the longest anyone knows of right now who has survived a spinal cord injury is fifty-eight years! That gives me a new goal to shoot for! Who knows what the next ten years will bring to survivors of spinal cord injury?

As always, I look forward to your comments.

Later, and I do mean later,

Mike
 

Saturday, March 28, 2015

Pacemaker Number Four Is Imminent

Last Thursday I had my acupuncture appointment at 1 PM with my pacemaker check at 2 PM, so I was feeling pretty good, nice and relaxed, when the technician put the little wand over my shoulder and on top of my pacemaker. She turned the machine on and the last two checks I have had of my pacemaker from three months ago and six months ago showed the battery had about a 30% life expectancy yet. Both of those technicians told me I would probably have to get a new pacemaker sometime towards the end of 2015.

I was completely shocked when the needle came up to only 10% and was red indicating my battery has deteriorated dramatically in the last three months! It needs to be replaced in the next month.

In late 1996, I was diagnosed with a lower heart block and needed my first pacemaker. That pacemaker lasted about five years. In early 2002, number two had to be replaced and had lasted about six years. That is the one I have my attendant holding in the picture.

Then, in 2008, when this picture was taken, they inserted my third pacemaker. They told me it should last about ten years. Seven years is a long ways short of ten years, but what am I going to do?



Click on the image to make it larger: 

I have a Medtronic pacemaker with Guidant cables. The technician told me it would be an in and out same-day replacement unless the cables need to be replaced. If they do, then I will need to stay overnight one night. The cables concern me because they are the original cables from 1996. I am guessing they will have to be replaced.  I do not know how long those cables are good for.

For you longtime readers of this blog, you know I have often contended I do not know what the next thing will be coming down the line; I know it will be something and this is it! I hope the next thing waits a little while!

I know some of my posts are not fun and relaxing. I am just keeping it real. It is issues like this that keep me going. If you read my book, you know the doctors told my family in the fall of 1971 my life expectancy was nine years! At 43+ years I am still here and with another new pacemaker it should keep me going a while longer.

If you are not aware of my voice recognition software, Dragon Dictate, the microphone in front of me is how I operate all of my posts. That is why sometimes I can go on for long periods of time because all I have to do is talk and the words appear on the page. For those of you that know me well, you know I like to talk!

I will keep you informed about how this next pacemaker installation goes and probably have something to say about it in another post.

By the way, I have this pacemaker in the picture attached to my briefcase with a little rawhide strap and use it as a teaching tool when I give presentations. I wonder what the next pacemaker will look like?

As always, I look forward to your comments.

Later,

Mike

Tuesday, December 4, 2012

Is Extending The School Year A Good Thing?

Many studies have shown students lose a good amount of what they learn in the typical nine-month school year over their three-month summer vacation. That three months has been a huge detriment to their retention, and causes a goodly amount of time to get back to where they were before their summer break.

That is one reason why many schools across the county are moving to year-round schooling. If you do not know, in year-round schools, they never have a break of more than six weeks.

I just read an article that originated from the Associated Press telling of a pilot program in five states and forty schools that will extend the school year by six hundred hours. According to the article, Colorado, Connecticut, Massachusetts, New York and Tennessee will take part in the initiative, which is intended to boost student achievement and make U.S. schools more competitive on a global level.


You may read the article from USATODAY.com by clicking here. I could not find the original article on the Associated Press's website.


I believe this is a good step towards catching up with much of the rest of the developed world. The United States has continuously been falling backwards in our ranking for many of the education benchmarks which we have historically led the world. This pilot program will only last three years and then evaluated.

I am guessing we are going to see marked increases in these schools' results.

Of course, there are detractors to the idea and believe it is not the way to go because countries like India and China have shorter school years and are getting better results. Is it a question of quantity versus quality? Is it a question of prioritization? I am anxious to see what the results will be with their students with severe disabilities, all their students with special needs for that matter, low-income students and all of the round students that do not fit in the square holes.

Something needs to be done to get all our schools educating as many of our young people to the highest degree we possibly can. I certainly do not have the answers.

As always, I look forward to your comments.

Later,

Mike

Wednesday, June 2, 2010

Access For All Is On The Air

This Is Cool! If you like talk radio and are interested in disability issues, there is now a radio show for you. Access for All is on the air Sunday afternoons from 2:00 p.m. to 3:00 p.m. on AM950 KTNF Radio in Minneapolis. If you are outside the Twin Cities listening area, you may also listen to the show at the station's website by clicking here.

According to their website, "Hosted by Mike Chevrette, Access for All focuses on topics and issues that Minnesotans with disabilities face. We take a non-biased approach to discussing the true barriers that must be knocked down in order for all citizens to be a full part of society."

Like me, Mike is a Cervical quadriplegic who got hurt about the time I did. I have known him for many years and I am anxious to listen to what he has to say. Who knows, maybe I will learn something new? They have a call-in number I may have to put on speed dial! I have always said this blog was about learning. Well, here is another opportunity to learn.

I look forward to your comments.

Later,

Mike

Monday, July 27, 2009

I saw something yesterday ...

that has left a profound impact on me. I want to share a quick encounter I had with a man who broke his neck at C2, which is the second cervical vertebra; and is actually located in the skull. C1 and C2 are the vertebrae which your head swivels on, and the first bump out of your skull, is C3. You can feel C3 by touching the first bump, or spinous process on your spine, just outside your skull. C1, or the Atlas (the first cervical vertebra, which supports the head) and C2, or the Axis, are just above that.

That was my quick Anatomy lesson for this post.

Back to my story: Sunday afternoon, I went up my alley about 1:30 to pick-up a few prescriptions at my pharmacy. On the way home, I turned down the alley and dropped the bag carrying my precious cargo. So, I looked around to see if there was anyone who could help me get my bag of drugs.

That was when I saw a man going through my neighbor's trash dumpster looking for food. The thing was — he was wearing a halo, which for those of you who don't know, is the devise they use to stabilize the cervical spine when someone breaks his or her neck by drilling four screws into your skull to hold it in place. It looks like this:

As I approached him, I didn't think he was capable of bending down to the ground to pick up my prescriptions, so as I passed behind him, I said, "Hi," and came in the house to get Tim, my attendant, to come and help me.

When I called Tim, I told him he wasn't going to believe what was going on outside! After picking up my goodies, we came up the alley and got to where Jim was, when the shy, quiet, wallflower that I am, politely asked him, "What happened to you?"

Without breaking stride in his quest for food by looking up, he said, "I broke my neck!"

Guess what I said? Yup, "So did I!"

That
got his attention and brought his head out of the dumpster. So, we shared our accident stories for a few minutes and I asked him, "How are you getting your medical care?"

That was when Jim chuckled a bit and said, "Right now, my General Assistance Medical Care (GAMC) is taking care of me, but at the end of the year, Pawlenty (Minnesota's Governor) is cutting my benefits and I don't know what I'll do."

Now, mind you, Jim wasn't very clean, the lamb's wool on his halo was filthy, he didn't look like he had bathed or gotten clean clothes for a significant amount of time, and he told me he was having a good day because he had found some food and a half bottle of wine in my neighbor's dumpster! He said, "I found a half bottle of wine, and I'm drinking that."

Then Tim asked him if he was sure it was wine. Jim assured him it was. He was quite confident about it, and was obviously looking forward to drinking it! I can only imagine where he was when he drank his half bottle of wine!

That was when Tim left. When I got inside, Tim asked, "What the hell is going on? Why is this guy in a halo going through dumpsters digging for food, when he should be adequately taken care of considering his medical condition? I wonder if he's a vet?" (Tim served in the Army for six years, so he's sensitive to the plight of veterans.) He told me later he couldn't watch Jim; he had a hard time being there.

I know this is a much longer post than I usually put up, but I just had to write about it. There is so much more I want to tell you about my encounter with Jim, the state of health care, budget cuts in the government, homelessness, the lucky ones who break their neck or back and walk away, how Jim broke his neck, and so on ... but, I think I may turn it into a chapter for the book. After all, that's the whole purpose of this blog! Remember, I'm not done yet!

I look forward to your comments.

Later,

Mike

Thursday, February 5, 2009

Scary Report

When you were in school, were you ever tied down, restrained in any way, or put in a secluded room for hours? Neither was I. According to this report by the National Disability Rights Network, it's a fairly common practice to deal with students with special needs.

A very detailed report published just last month, starts out, "Whenever we open a newspaper, turn on the television, or go on the Internet these days, we hear about another child dying or being injured in school while being restrained or secluded. Some may think these are isolated incidents, but, when Protection and Advocacy (P&A) agencies across this country report that school children have been killed, confined, tied up, pinned down, and battered, this is clearly more than an isolated issue — it is one of national concern."

The report chronicles students who have been strapped to chairs — even wheelchairs, held down by adults, grabbed, dragged and left in secluded rooms, handcuffed, locked in closets, and more. They identify extreme cases in virtually every state.

This little, seven-year-old Wisconsin girl died while being restrained and secluded.


You can read the entire report by clicking here. It's a 60-page pdf, and I will confess, I haven't read the whole thing. But I read enough to know it's worth sharing.

Here is a seclusion room in one classroom:




Tell me what you think.

Later,

Mike

Monday, July 14, 2008

SCI Facts and Figures

In reviewing some of my recent posts, it seems I am focusing on disability issues. I want to continue doing that and give you a great website to learn more about spinal cord injury facts and the incidence and prevalence of SCI in the United States. If you are a spinal cord injured person, have a family member or friend who has a SCI, or just want to learn more about the issue, you should check out this page and the rest of this website.

According to the
National Spinal Cord Injury Database's website:

The National Spinal Cord Injury Database has been in existence since 1973 and captures data from an estimated 13% of new SCI cases in the U.S. Since its inception, 26 federally funded Model SCI Care Systems have contributed data to the National SCI Database. As of October 2007 the database contained information on 25,415 persons who sustained traumatic spinal cord injuries.

You can get to the rest of this piece by clicking here.

One of the interesting trends I have seen these last several years is the changing terminology. One word in particular is changing — quadriplegia is being replaced by tetraplegia. They mean the same thing, and I am not quite sure why the change. Do you know? This article uses tetraplegia throughout.

In my mind, I will always be a quad. To me, a tertra is a tropical fish. Of course, that's coming from an old quad.

I look forward to your comments.

Later,

Mike